So we wait and pray, would you too?

This is an old pic of our girlie girl from her nursery school days. We just wanted to put something up here, and I am so computer challenged that I do not know how to download the new stuff. So here it is. What I wish I could have as a pic today is of Elle having her blood drawn! It was quite a sight. We went to the the neurologist today and part of the appt. was to have her blood drawn as an initial step in this process. He seemed to think the major stuff, MD, or CP, or any kind of form was a long shot simply because her symptoms don't match up. She would be getting weaker after she started into a run not stronger, which is what happens with her. he thought it could possibly be a congenital muscle disorder, (don't ask me the formal name of it!) that causes the muscles to be stiff. If that was even the case we would have to do a muscle biopsy in order to diagnose it and we are simply not there. So at the moment we wait, and pray. We pray that the blood tests would come back negative in all diseases or disorders that it can rule out, and we wait a few months and watch to see where Elle is, if its progressing or maintaining we will go the next step, if not, we will just continue to watch.

The waiting game just stinks. I mean lets be honest here folks....its just does. However, I am comforted in that in the waiting God can renew me, help me in my gripping fears, love me, walk with me through it. Its been a process of faith for me. I know you are praying. Maybe some of you pray for us, maybe some just think of us, but I can tell you I feel it. I was a basket case with the initial appts, and today despite a little snappy moment with Greg in the the Dr's office,(for which he forgave me!) I did really well. I still need the pray though. I sometimes feel just consumed with fear, literally having to fight it off, for me and all our family. Other times I feel so confident and peaceful. Its always been a struggle for me to not get lost in fear, and these kinds of things just seem to exasperate it. So when you are thinking of or praying for us, and the things I have asked for Elle, you can throw that into the mix.

Prayer is somewhat of and enigma, not formulaic, and God knows there are enough books on how to do it. The only reference on how to in the Bible from Jesus, is the Lords Prayer. I just know that in all of it, I just lay it out there for God to hear me say what He already knows. To beseech Him, and ask of Him. To communicate that I love Him and that I need Him, especially in this and these types of things, and of course so much more, (praise etc.). What I can say confidently is that He listens, and He is there. I thank Jesus for all of you and for all your prayers for me, for Elle, for our family. Please keep praying for us, with us. We love you and feel them, and need you.